The Kris Connor Foundation firmly asserts that achondroplasia should not be classified as a rare disease. Dwarfism, particularly achondroplasia, is a genetic condition caused by a mutation affecting bone growth, not a disease that needs to be cured. With the right support and understanding, individuals with dwarfism can lead healthy and fulfilling lives.

Unfortunately, there's a troubling trend within the pharmaceutical industry that labels dwarfism as a rare disease, potentially misleading parents into thinking their children need a “cure.”

This narrative is harmful and places unnecessary pressure on families. We advocate for recognizing achondroplasia as a unique and valid experience deserving of acceptance rather than stigma.

Let’s raise awareness and promote understanding together. #IAmNotARareDisease